Understanding Patients’ and Living Donors’ Kidney Paired Donation Educational Experiences and Recommendations for Improvement

Rachyl Pines, Yaquelin Arevalo Iraheta, Katia A. Dahmani, Matthew Cooper, Amy D. Waterman

Research output: Contribution to journalArticlepeer-review

1 Scopus citations


Introduction: Educating potential kidney patients and living donors about the risks and benefits of kidney paired donation to ensure they make informed decisions is complex. This study aimed to increase understanding of patients’ and donors’ decision-making about donation, the educational content they received, and their recommendations for educational improvements. Method: We conducted a mixed methods study, including semistructured interviews and quantitative surveys, with 43 participants (25 living donors; 18 kidney recipients). Findings: Participants reported that the benefits of paired donation motivated them to participate (ie, helping multiple people, receiving a transplant sooner, flexible timing of donation). Although deciding to participate in paired donation was a systematic, logical, and carefully considered process for some. For most, it was a quickly made, often emotion-based decision. Paired donation educational content on different topics varied, with recipients reporting receiving less information than donors about donor protections and processes to ameliorate the challenges faced, such as broken swaps and chains, and delays in matching. Those who faced challenges requested more information about donor protections and support during and after paired donation. Although many acknowledged their transplant coordinators’ helpfulness, participants also recommended being more proactive in learning about kidney paired donation and speaking to former donors and recipients beforehand. Discussion: Standardized, health literate educational content addressing the gaps and variability in education received may help increase paired donation informed decision-making.

Original languageEnglish (US)
Pages (from-to)19-26
Number of pages8
JournalProgress in Transplantation
Issue number1
StatePublished - Mar 2022


  • decision-making
  • kidney paired donation
  • kidney transplantation

ASJC Scopus subject areas

  • Transplantation


Dive into the research topics of 'Understanding Patients’ and Living Donors’ Kidney Paired Donation Educational Experiences and Recommendations for Improvement'. Together they form a unique fingerprint.

Cite this