TY - JOUR
T1 - The neglect of persons with severe brain injury in the United States
T2 - An international human rights analysis
AU - Ezer, Tamar
AU - Wright, Megan S.
AU - Fins, Joseph J.
N1 - Funding Information:
Tamar Ezer dedicates this piece to Johanna Fine, a talented and passionate health and human rights advocate who is currently experiencing severe brain injury. She also thanks Alisha Bjerregaard, the acting director of UN advocacy at Women Enabled International, and Joyce Fingeroth, a clinician-scientist in infectious disease immunology at the University of Massachusetts Medical School and Johanna Fine’s mother, for their helpful review and feedback on a draft of this paper. Lastly, she thanks Franco Piccinini for his helpful research and support. Joseph J. Fins dedicates this piece to the memory of Javier Romañach Cabrero and to his friends and colleagues at the Instituto de Derechos Humanos Bartolomé de las Casas at Universidad Carlos III in Madrid.
Publisher Copyright:
© 2020 Ezer, Wright, and Fins.
PY - 2020/6
Y1 - 2020/6
N2 - Brain injury contributes more to death and disability globally than any other traumatic incident. While the past decade has seen significant medical advances, laws and policies remain stumbling blocks to treatment and care. The quality of life of persons with severe brain injury often declines with unnecessary institutionalization and inadequate access to rehabilitation and assistive technologies. This raises a host of rights violations that are hidden, given that persons with severe brain injury are generally invisible and marginalized. This article highlights the current neglect and experiences of persons with severe brain injury in the United States, analyzing the rights to life, health, benefit from scientific progress, education, freedom of expression, community, family, and equality.
AB - Brain injury contributes more to death and disability globally than any other traumatic incident. While the past decade has seen significant medical advances, laws and policies remain stumbling blocks to treatment and care. The quality of life of persons with severe brain injury often declines with unnecessary institutionalization and inadequate access to rehabilitation and assistive technologies. This raises a host of rights violations that are hidden, given that persons with severe brain injury are generally invisible and marginalized. This article highlights the current neglect and experiences of persons with severe brain injury in the United States, analyzing the rights to life, health, benefit from scientific progress, education, freedom of expression, community, family, and equality.
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M3 - Article
C2 - 32669806
AN - SCOPUS:85087001999
SN - 1079-0969
VL - 22
SP - 265
EP - 278
JO - Health and Human Rights
JF - Health and Human Rights
IS - 1
ER -