Stakeholders’ perspectives on transplant metrics: the 2022 Scientific Registry of Transplant Recipients’ consensus conference

Jon J. Snyder, Cory R. Schaffhausen, Allyson Hart, David A. Axelrod, Dorrie Dils, Richard N. Formica, A. Osama Gaber, Heather F. Hunt, Jennifer Jones, Sumit Mohan, Rachel E. Patzer, Sean P. Pinney, Lloyd E. Ratner, Dirk Slaker, Darren Stewart, Zoe A. Stewart, Sean Van Slyck, Bertram L. Kasiske, Ryutaro Hirose, Ajay K. Israni

Research output: Contribution to journalArticlepeer-review

6 Scopus citations

Abstract

In July 2022, the Scientific Registry of Transplant Recipients (SRTR) hosted an innovative, multistakeholder consensus conference to identify information and metrics desired by stakeholders in the transplantation system, including patients, living donors, caregivers, deceased donor family members, transplant professionals, organ procurement organization professionals, payers, and regulators. Crucially, patients, caregivers, living donors, and deceased donor family members were included in all aspects of this conference, including serving on the planning committee, participating in preconference focus groups and learning sessions, speaking at the conference, moderating conference sessions and breakout groups, and shaping the conclusions. Patients constituted 24% of the meeting participants. In this report, we document the proceedings and enumerate 160 recommendations, 10 of which have been highly prioritized. SRTR will use the recommendations to develop new presentations of information and metrics requested by stakeholders to support informed decision-making.

Original languageEnglish (US)
Pages (from-to)875-890
Number of pages16
JournalAmerican Journal of Transplantation
Volume23
Issue number7
DOIs
StatePublished - Jul 2023

Keywords

  • Scientific Registry of Transplant Recipients
  • consensus conference
  • meeting report
  • metrics
  • Humans
  • Tissue and Organ Procurement
  • Benchmarking
  • Registries
  • Transplants
  • Living Donors
  • Tissue Donors
  • Transplant Recipients

ASJC Scopus subject areas

  • Transplantation
  • Pharmacology (medical)
  • Immunology and Allergy

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