Spina Bifida

Spina bifida (SB) is a common birth defect associated with varying degrees of neurocognitive, functional, and organ system impairment and requiring lifelong condition management. In order to provide quality health care and promote quality of life for adults with SB, the adult primary care provider (PCP) should be familiar with: (1) basic pathophysiology and management of SB-specific comorbidities such as shunted hydrocephalus, neurogenic bowel and bladder, musculoskeletal impairments, and skin ulcers; (2) necessary adaptations needed due to physical and neurocognitive impairments associated with SB; and (3) condition-specific nuances to general adult care including weight management, sexual and reproductive health, and mental health. The PCP should also be familiar with the subspecialists and resources needed to provide comprehensive and coordinated care for this population.