Spina Bifida

Ellen Fremion; Natalia Hernandez; Rose Khavari; Julie N. Stewart; Jonathan Tolentino

doi:10.1007/978-3-031-54281-7_38

Spina Bifida

Ellen Fremion, Natalia Hernandez, Rose Khavari, Julie N. Stewart, Jonathan Tolentino

Research output: Chapter in Book/Report/Conference proceeding › Chapter

Abstract

Spina bifida (SB) is a common birth defect associated with varying degrees of neurocognitive, functional, and organ system impairment and requiring lifelong condition management. In order to provide quality health care and promote quality of life for adults with SB, the adult primary care provider (PCP) should be familiar with: (1) basic pathophysiology and management of SB-specific comorbidities such as shunted hydrocephalus, neurogenic bowel and bladder, musculoskeletal impairments, and skin ulcers; (2) necessary adaptations needed due to physical and neurocognitive impairments associated with SB; and (3) condition-specific nuances to general adult care including weight management, sexual and reproductive health, and mental health. The PCP should also be familiar with the subspecialists and resources needed to provide comprehensive and coordinated care for this population.

Original language	English (US)
Title of host publication	Care of Adults with Chronic Childhood Conditions
Subtitle of host publication	A Practical Guide, Second Edition
Publisher	Springer International Publishing
Pages	575-593
Number of pages	19
ISBN (Electronic)	9783031542817
ISBN (Print)	9783031542800
DOIs	https://doi.org/10.1007/978-3-031-54281-7_38
State	Published - Jan 1 2024

ASJC Scopus subject areas

General Medicine

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10.1007/978-3-031-54281-7_38

Cite this

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AU - Hernandez, Natalia

AU - Khavari, Rose

AU - Stewart, Julie N.

AU - Tolentino, Jonathan

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Spina Bifida

Abstract

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