Rights come to mind: Brain injury, ethics, and the struggle for consciousness

Research output: Book/ReportBook

165 Scopus citations


Through the sobering story of Maggie Worthen, and her mother, Nancy, this book tells of one family's struggle with severe brain injury and how developments in neuroscience call for a reconsideration of what society owes patients at the edge of consciousness. Drawing upon more than fifty in-depth family interviews, the history of severe brain injury from Quinlan to Schiavo, and his participation in landmark clinical trials, such as the first use of deep brain stimulation in the minimally conscious state, Joseph J. Fins captures the paradox of medical and societal neglect even as advances in neuroscience suggest new ways to mend the broken brain. Responding to the dire care provided to these marginalized patients, after heroically being saved, Fins places society's obligations to patients with severe injury within the historical legacy of the civil and disability rights movements, offering a stirring synthesis of public policy and physician advocacy.

Original languageEnglish (US)
PublisherCambridge University Press
Number of pages379
ISBN (Electronic)9781139051279
ISBN (Print)9780521887502
StatePublished - Jan 1 2015

ASJC Scopus subject areas

  • Medicine(all)


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