Long-term psychosocial outcomes after nondirected donation: A single-center experience

Research output: Contribution to journalArticle

Cheryl Jacobs, Danielle M. Berglund, Jennifer F. Wiseman, Catherine Garvey, Dawn B. Larson, Margaret Voges, Carmen Radecki Breitkopf, Hassan N. Ibrahim, Arthur J. Matas

Short-term studies have demonstrated that nondirected donors (NDDs) have psychosocial outcomes that are similar to donors who donate directly, but long-term studies have not been done. NDDs at our center were surveyed regarding motivation; support during donation; stress related to donation; regret; financial resources used for donation; preferences about communication with the recipient; and cost reimbursement. Of 100 NDDs who donated at our center in the last 20 years, 95 remain in contact with us, and 77 responded to our survey (mean ± standard deviation [SD] 6.7 ± 4 years postdonation). The most common motivation for donation was the desire to help another (99%). Many NDDs received support from family, friends, and employers. NDDs voiced stress about the possibility of recipient kidney rejection, physical consequences to themselves, and financial burden. Only one donor expressed regret. Almost half wanted some recipient information at donation; 61% preferred routine recipient status updates; 56% believed meeting the recipient should occur at any mutually agreeable time; and 55% endorsed reimbursement for expenses. Stressors for NDDs are analogous to those of directed donors; NDDs prefer having some information about the recipient and prefer to be given a choice regarding the timing for communication with the recipient. NDDs supported donation being financially neutral.

Original languageEnglish (US)
Pages (from-to)1498-1506
Number of pages9
JournalAmerican Journal of Transplantation
Volume19
Issue number5
DOIs
StatePublished - May 1 2019

PMID: 30417522

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Long-term psychosocial outcomes after nondirected donation : A single-center experience. / Jacobs, Cheryl; Berglund, Danielle M.; Wiseman, Jennifer F.; Garvey, Catherine; Larson, Dawn B.; Voges, Margaret; Radecki Breitkopf, Carmen; Ibrahim, Hassan N.; Matas, Arthur J.

In: American Journal of Transplantation, Vol. 19, No. 5, 01.05.2019, p. 1498-1506.

Research output: Contribution to journalArticle

Harvard

Jacobs, C, Berglund, DM, Wiseman, JF, Garvey, C, Larson, DB, Voges, M, Radecki Breitkopf, C, Ibrahim, HN & Matas, AJ 2019, 'Long-term psychosocial outcomes after nondirected donation: A single-center experience' American Journal of Transplantation, vol. 19, no. 5, pp. 1498-1506. https://doi.org/10.1111/ajt.15179

APA

Jacobs, C., Berglund, D. M., Wiseman, J. F., Garvey, C., Larson, D. B., Voges, M., ... Matas, A. J. (2019). Long-term psychosocial outcomes after nondirected donation: A single-center experience. American Journal of Transplantation, 19(5), 1498-1506. https://doi.org/10.1111/ajt.15179

Vancouver

Jacobs C, Berglund DM, Wiseman JF, Garvey C, Larson DB, Voges M et al. Long-term psychosocial outcomes after nondirected donation: A single-center experience. American Journal of Transplantation. 2019 May 1;19(5):1498-1506. https://doi.org/10.1111/ajt.15179

Author

Jacobs, Cheryl ; Berglund, Danielle M. ; Wiseman, Jennifer F. ; Garvey, Catherine ; Larson, Dawn B. ; Voges, Margaret ; Radecki Breitkopf, Carmen ; Ibrahim, Hassan N. ; Matas, Arthur J. / Long-term psychosocial outcomes after nondirected donation : A single-center experience. In: American Journal of Transplantation. 2019 ; Vol. 19, No. 5. pp. 1498-1506.

BibTeX

@article{840e3a6e9f574bf38d7515ade41be144,
title = "Long-term psychosocial outcomes after nondirected donation: A single-center experience",
abstract = "Short-term studies have demonstrated that nondirected donors (NDDs) have psychosocial outcomes that are similar to donors who donate directly, but long-term studies have not been done. NDDs at our center were surveyed regarding motivation; support during donation; stress related to donation; regret; financial resources used for donation; preferences about communication with the recipient; and cost reimbursement. Of 100 NDDs who donated at our center in the last 20 years, 95 remain in contact with us, and 77 responded to our survey (mean ± standard deviation [SD] 6.7 ± 4 years postdonation). The most common motivation for donation was the desire to help another (99{\%}). Many NDDs received support from family, friends, and employers. NDDs voiced stress about the possibility of recipient kidney rejection, physical consequences to themselves, and financial burden. Only one donor expressed regret. Almost half wanted some recipient information at donation; 61{\%} preferred routine recipient status updates; 56{\%} believed meeting the recipient should occur at any mutually agreeable time; and 55{\%} endorsed reimbursement for expenses. Stressors for NDDs are analogous to those of directed donors; NDDs prefer having some information about the recipient and prefer to be given a choice regarding the timing for communication with the recipient. NDDs supported donation being financially neutral.",
keywords = "clinical research/practice, donor evaluation, donor follow-up, donors and donation, education, health services and outcomes research, paired exchange, social sciences",
author = "Cheryl Jacobs and Berglund, {Danielle M.} and Wiseman, {Jennifer F.} and Catherine Garvey and Larson, {Dawn B.} and Margaret Voges and {Radecki Breitkopf}, Carmen and Ibrahim, {Hassan N.} and Matas, {Arthur J.}",
year = "2019",
month = "5",
day = "1",
doi = "10.1111/ajt.15179",
language = "English (US)",
volume = "19",
pages = "1498--1506",
journal = "American Journal of Transplantation",
issn = "1600-6135",
publisher = "Wiley",
number = "5",

}

RIS

TY - JOUR

T1 - Long-term psychosocial outcomes after nondirected donation

T2 - American Journal of Transplantation

AU - Jacobs, Cheryl

AU - Berglund, Danielle M.

AU - Wiseman, Jennifer F.

AU - Garvey, Catherine

AU - Larson, Dawn B.

AU - Voges, Margaret

AU - Radecki Breitkopf, Carmen

AU - Ibrahim, Hassan N.

AU - Matas, Arthur J.

PY - 2019/5/1

Y1 - 2019/5/1

N2 - Short-term studies have demonstrated that nondirected donors (NDDs) have psychosocial outcomes that are similar to donors who donate directly, but long-term studies have not been done. NDDs at our center were surveyed regarding motivation; support during donation; stress related to donation; regret; financial resources used for donation; preferences about communication with the recipient; and cost reimbursement. Of 100 NDDs who donated at our center in the last 20 years, 95 remain in contact with us, and 77 responded to our survey (mean ± standard deviation [SD] 6.7 ± 4 years postdonation). The most common motivation for donation was the desire to help another (99%). Many NDDs received support from family, friends, and employers. NDDs voiced stress about the possibility of recipient kidney rejection, physical consequences to themselves, and financial burden. Only one donor expressed regret. Almost half wanted some recipient information at donation; 61% preferred routine recipient status updates; 56% believed meeting the recipient should occur at any mutually agreeable time; and 55% endorsed reimbursement for expenses. Stressors for NDDs are analogous to those of directed donors; NDDs prefer having some information about the recipient and prefer to be given a choice regarding the timing for communication with the recipient. NDDs supported donation being financially neutral.

AB - Short-term studies have demonstrated that nondirected donors (NDDs) have psychosocial outcomes that are similar to donors who donate directly, but long-term studies have not been done. NDDs at our center were surveyed regarding motivation; support during donation; stress related to donation; regret; financial resources used for donation; preferences about communication with the recipient; and cost reimbursement. Of 100 NDDs who donated at our center in the last 20 years, 95 remain in contact with us, and 77 responded to our survey (mean ± standard deviation [SD] 6.7 ± 4 years postdonation). The most common motivation for donation was the desire to help another (99%). Many NDDs received support from family, friends, and employers. NDDs voiced stress about the possibility of recipient kidney rejection, physical consequences to themselves, and financial burden. Only one donor expressed regret. Almost half wanted some recipient information at donation; 61% preferred routine recipient status updates; 56% believed meeting the recipient should occur at any mutually agreeable time; and 55% endorsed reimbursement for expenses. Stressors for NDDs are analogous to those of directed donors; NDDs prefer having some information about the recipient and prefer to be given a choice regarding the timing for communication with the recipient. NDDs supported donation being financially neutral.

KW - clinical research/practice

KW - donor evaluation

KW - donor follow-up

KW - donors and donation

KW - education

KW - health services and outcomes research

KW - paired exchange

KW - social sciences

UR - http://www.scopus.com/inward/record.url?scp=85059249188&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85059249188&partnerID=8YFLogxK

U2 - 10.1111/ajt.15179

DO - 10.1111/ajt.15179

M3 - Article

VL - 19

SP - 1498

EP - 1506

JO - American Journal of Transplantation

JF - American Journal of Transplantation

SN - 1600-6135

IS - 5

ER -

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