Living-donor follow-up attitudes and practices in U.S. kidney and liver donor programs

Amy D. Waterman, Mary Amanda Dew, Connie L. Davis, Melanie McCabe, Jennifer L. Wainright, Cynthia L. Forland, Lee Bolton, Matthew Cooper

Research output: Contribution to journalArticlepeer-review

26 Scopus citations

Abstract

Background. Although U.S. transplantation programs must submit living-donor follow-up data through 2 years after donation, the submissions have high rates of incomplete or missing data. It is important to understand barriers programs face in collecting follow-up information. Methods. Two hundred thirty-one programs performing living kidney donor (LKD) and/or living liver donor (LLD) transplantation were contacted to complete a survey about program attitudes concerning donor follow-up, follow-up practices, and barriers to success. Results. Respondents representing 147 programs (111 with only LKD and 36 with both LKD and LLD) participated. Sixty-eight percent of LKD and 83% of LLD respondents said that achieving follow-up was a high priority. The majority agreed that donors should be followed at least 2 years (61% LKD programs and 73% LLD programs), and sizeable percentages (31% LKD and 37% LLD) endorsed 5 years of follow-up. However, approximately 40% of programs lost contact with more than 75% of their donors by 2 years after donation. Follow-up barriers included donors not wanting to return to the program (87%), out-of-date contact information (73%), and lack of program (54%) or donor (49%) reimbursement for follow-up costs. Whereas 92% of LKD and 96% of LLD programs inform potential donors about follow-up requirements, fewer (67% LKD and 78% LLD) develop plans with donors to achieve follow-up. Conclusions. Most respondents agree that donor follow-up is important, but they report difficulty achieving it. Improvements may occur if programs work with donors to develop plans to achieve follow-up, programmatic standards are set for completeness in follow-up data reporting, and sufficient staff resources are available to ensure ongoing postdonation contact.

Original languageEnglish (US)
Pages (from-to)883-888
Number of pages6
JournalTransplantation
Volume95
Issue number6
DOIs
StatePublished - May 27 2013

Keywords

  • Attitudes
  • Kidney
  • Liver
  • Living-donor follow-up
  • Practices

ASJC Scopus subject areas

  • Transplantation

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