Abstract
Patient narratives from two investigational deep brain stimulation trials for traumatic brain injury and obsessive-compulsive disorder reveal that injury and illness rob individuals of personal identity and that neuromodulation can restore it. The early success of these interventions makes a compelling case for continued post-trial access to these technologies. Given the centrality of personal identity to respect for persons, a failure to provide continued access can be understood to represent a metaphorical identity theft. Such a loss recapitulates the pain of an individual's initial injury or illness and becomes especially tragic because it could be prevented by robust policy. A failure to fulfill this normative obligation constitutes a breach of disability law, which would view post-trial access as a means to achieve social reintegration through this neurotechnological accommodation.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 34-41 |
| Number of pages | 8 |
| Journal | Hastings Center Report |
| Volume | 54 |
| Issue number | 1 |
| DOIs | |
| State | Published - Jan 1 2024 |
Keywords
- deep brain stimulation
- disability rights
- identity theft
- obsessive-compulsive disorder
- personal identity
- research ethics
- traumatic brain injury
- Humans
- Identity Theft
- Deep Brain Stimulation/methods
- Obsessive-Compulsive Disorder/therapy
ASJC Scopus subject areas
- Health(social science)
- Issues, ethics and legal aspects
- Philosophy
- Health Policy
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