Factors enabling transplant program participation in the Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective: A national survey

Krista L. Lentine, Mary Amanda Dew, Huiling Xiao, Addie Wisniewski, Macey L. Levan, Fawaz Al Ammary, Asif Sharfuddin, David A. Axelrod, Amy D. Waterman, Bertram Kasiske

Research output: Contribution to journalArticlepeer-review

3 Scopus citations

Abstract

Background: The Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective (LDC), the first effort to create a lifetime registry for living donor candidates in the United States, requires transplant programs to register donor candidates while the SRTR conducts follow-up. Methods: To better understand facilitators and barriers to program participation, we conducted a brief electronic survey of U.S. transplant program staff from October 26, 2021 to December 17, 2021. Results: We received 132 responses, with at least one response from 87 living donor programs (46 kidney programs, 33 kidney and liver programs, and eight liver programs alone). We found 86% of program representatives strongly agreed or agreed that funding adequate to cover the cost of data collection would facilitate LDC participation, 92% agreed or strongly agreed with importance of electronic data submission options, and 74% reported that elimination of requirements to submit duplicative pre-operative information to the Organ Procurement and Transplantation Network (OPTN) would be helpful. Other potentially enabling factors include reduction in duration of OPTN postdonation follow-up requirements, ease-of-use, protection from data use for regulation, adequate data security, and equity in data access. Conclusion: This survey identifies potential targets to strengthen participation in the effort to create a national living donor registry in the United States. Collaboration and investment to overcome barriers to LDC participation among transplant programs are vital to generate long-term data on living donation for donor candidates, donors, and patients in need of transplant.

Original languageEnglish (US)
Article numbere14908
Pages (from-to)e14908
JournalClinical Transplantation
Volume37
Issue number4
DOIs
StatePublished - Apr 2023

Keywords

  • SRTR
  • follow-up care
  • living kidney donors
  • registry
  • survey
  • United States
  • Humans
  • Tissue and Organ Procurement
  • Organ Transplantation
  • Living Donors
  • Transplant Recipients
  • Registries
  • Surveys and Questionnaires

ASJC Scopus subject areas

  • Transplantation

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