TY - JOUR
T1 - Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care
AU - Guidry-Grimes, Laura
AU - Savin, Katie
AU - Stramondo, Joseph A.
AU - Reynolds, Joel Michael
AU - Tsaplina, Marina
AU - Burke, Teresa Blankmeyer
AU - Ballantyne, Angela
AU - Kittay, Eva Feder
AU - Stahl, Devan
AU - Scully, Jackie Leach
AU - Garland-Thomson, Rosemarie
AU - Tarzian, Anita
AU - Dorfman, Doron
AU - Fins, Joseph J.
N1 - © 2020 The Hastings Center.
PY - 2020/5/1
Y1 - 2020/5/1
N2 - In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements through disability justice entails a commitment to both distributive and recognitive justice. The disability rights movement's demand “Nothing about us, without us” requires substantive inclusion of disabled people in decision-making related to their interests, including in crisis planning before, during, and after a pandemic like Covid-19.
AB - In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements through disability justice entails a commitment to both distributive and recognitive justice. The disability rights movement's demand “Nothing about us, without us” requires substantive inclusion of disabled people in decision-making related to their interests, including in crisis planning before, during, and after a pandemic like Covid-19.
KW - crisis standards of care
KW - disability
KW - equity
KW - justice
KW - pandemic ethics
KW - Health Equity/ethics
KW - Pandemics
KW - Humans
KW - Coronavirus Infections/epidemiology
KW - Standard of Care/ethics
KW - Pneumonia, Viral/epidemiology
KW - Betacoronavirus
KW - Disabled Persons
KW - Communication
KW - Social Justice/ethics
UR - http://www.scopus.com/inward/record.url?scp=85086940941&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85086940941&partnerID=8YFLogxK
U2 - 10.1002/hast.1128
DO - 10.1002/hast.1128
M3 - Article
C2 - 32596899
AN - SCOPUS:85086940941
SN - 0093-0334
VL - 50
SP - 28
EP - 32
JO - Hastings Center Report
JF - Hastings Center Report
IS - 3
ER -