TY - JOUR
T1 - Development of the Huntington disease work function scale
AU - The PREDICT-HD Investigators and Coordinators of the Huntington Study Group
AU - Brossman, Bradley
AU - Williams, Janet K.
AU - Downing, Nancy
AU - Mills, James A.
AU - Paulsen, Jane S.
AU - Wassink, Thomas
AU - Cross, Stephen
AU - Kimble, Mycah
AU - Ryan, Patricia
AU - Wood, Jessica
AU - Epping, Eric A.
AU - Beglinger, Leigh J.
AU - Chiu, Edmond
AU - Yastrubetskaya, Olga
AU - Preston, Joy
AU - Goh, Anita
AU - Fonseka, Chathushka
AU - Antonopoulos, Stephanie
AU - Loi, Samantha
AU - Chua, Phyllis
AU - Komiti, Angela
AU - Raymond, Lynn
AU - Dar Santos, Rachelle
AU - Carter, Kimberley
AU - Decolongon, Joji
AU - Rosenblatt, Adam
AU - Ross, Christopher A.
AU - Shpritz, Barnett
AU - Yoritomo, Nadine
AU - Welsh, Claire
AU - Mallonee, William M.
AU - Suter, Greg
AU - Addison, Judy
AU - Samii, Ali
AU - Macaraeg, Alma
AU - Jones, Randi
AU - Wood-Siverio, Cathy
AU - Factor, Stewart A.
AU - Testa, Claudia
AU - Barker, Roger A.
AU - Mason, Sarah
AU - Goodman, Anna
AU - Dipietro, Anna
AU - McCusker, Elizabeth
AU - Griffith, Jane
AU - Loy, Clement
AU - Gunn, David
AU - Landwehrmeyer, Bernhard G.
AU - Orth, Michael
AU - Ondo, William G.
PY - 2012/10/1
Y1 - 2012/10/1
N2 - OBJECTIVE:: A work function measure specific for persons with prodromal Huntington disease (HD) was created to assist with workplace accommodations. METHODS:: A self-report HD Work Function (HDWF) measure was developed from focus group and expert validation. RESULTS:: Pilot studies with 238 people with prodromal HD, and 185 companions; and 89 people without prodromal HD, and 70 companions indicate that HDWF has acceptable internal consistency (Cronbach α = 0.77), acceptable interrater reliability (r = 0.58), and acceptable convergent validity with selected items from the Endicott Work Productivity Scale (r = -0.56), Social Adjustment Scale-Self Report (r = -0.29), and Everyday Cognition (r = -0.70). The HDWF can distinguish between people with prodromal HD and people with an HD family history who do not have prodromal HD (P < 0.0001). CONCLUSIONS:: The HDWF is a brief self-assessment that may be used to monitor work function.
AB - OBJECTIVE:: A work function measure specific for persons with prodromal Huntington disease (HD) was created to assist with workplace accommodations. METHODS:: A self-report HD Work Function (HDWF) measure was developed from focus group and expert validation. RESULTS:: Pilot studies with 238 people with prodromal HD, and 185 companions; and 89 people without prodromal HD, and 70 companions indicate that HDWF has acceptable internal consistency (Cronbach α = 0.77), acceptable interrater reliability (r = 0.58), and acceptable convergent validity with selected items from the Endicott Work Productivity Scale (r = -0.56), Social Adjustment Scale-Self Report (r = -0.29), and Everyday Cognition (r = -0.70). The HDWF can distinguish between people with prodromal HD and people with an HD family history who do not have prodromal HD (P < 0.0001). CONCLUSIONS:: The HDWF is a brief self-assessment that may be used to monitor work function.
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U2 - 10.1097/JOM.0b013e31825f30ab
DO - 10.1097/JOM.0b013e31825f30ab
M3 - Article
C2 - 22995807
AN - SCOPUS:84867577975
SN - 1076-2752
VL - 54
SP - 1300
EP - 1308
JO - Journal of Occupational and Environmental Medicine
JF - Journal of Occupational and Environmental Medicine
IS - 10
ER -