TY - JOUR
T1 - Adaptation of the Chronic Disease Self-Management Program for Cancer Survivors
T2 - Feasibility, Acceptability, and Lessons for Implementation
AU - Risendal, B.
AU - Dwyer, A.
AU - Seidel, R.
AU - Lorig, K.
AU - Katzenmeyer, C.
AU - Coombs, L.
AU - Kellar-Guenther, Y.
AU - Warren, L.
AU - Franco, A.
AU - Ory, M.
N1 - Funding Information:
Special thanks goes to COAW staff who are instrumental in the implementation of this program: Lynnzy McIntosh, BA and Maripat Gallas, BS. This work was supported by Cooperative Agreement number 5U48DP001938 (Prevention Research Center) and 1U48 DP001924 (Cancer Prevention and Control Research Network) from the Centers for Disease Control and Prevention. The findings and conclusions in this article are those of the author(s) and do not necessarily represent the official position of the Centers for Disease Control and Prevention.
Publisher Copyright:
© 2014, Springer Science+Business Media New York.
PY - 2014/12
Y1 - 2014/12
N2 - Self-management in chronic disease has been shown to improve patient-reported and health care-related outcomes. However, relatively little information about its utility in cancer survivorship is known. We evaluated the feasibility and acceptability of the delivery of an adaptation of the evidence-based Chronic Disease Self-management Program (Stanford) called Cancer Thriving and Surviving (CTS). Triangulated mixed methods were used to capture baseline characteristics and post-program experiences using a combination of closed- and open-ended survey items; emergent coding and simple descriptive statistics were used to summarize the data. Twenty-seven workshops were delivered by 22 CTS leaders to 244 participants between August 2011 and January 2013 in a variety of settings (48 % community, 30 % health care, 22 % regional/community cancer center). Representing a variety of cancer types, about half the participants were 1–3 years post-diagnosis and 45 % were 4 or more years from diagnosis. Program attendance was high with 84 % of participants attending four or more of the six sessions in the workshop. Overall, 95 % of the participants were satisfied with the program content and leaders, and would recommend the program to friends and family. These results confirm the feasibility and acceptability of delivery of a high-fidelity, peer-led model for self-management support for cancer survivors. Expansion of the CTS represents a powerful tool toward improving health-related outcomes in this at-risk population.
AB - Self-management in chronic disease has been shown to improve patient-reported and health care-related outcomes. However, relatively little information about its utility in cancer survivorship is known. We evaluated the feasibility and acceptability of the delivery of an adaptation of the evidence-based Chronic Disease Self-management Program (Stanford) called Cancer Thriving and Surviving (CTS). Triangulated mixed methods were used to capture baseline characteristics and post-program experiences using a combination of closed- and open-ended survey items; emergent coding and simple descriptive statistics were used to summarize the data. Twenty-seven workshops were delivered by 22 CTS leaders to 244 participants between August 2011 and January 2013 in a variety of settings (48 % community, 30 % health care, 22 % regional/community cancer center). Representing a variety of cancer types, about half the participants were 1–3 years post-diagnosis and 45 % were 4 or more years from diagnosis. Program attendance was high with 84 % of participants attending four or more of the six sessions in the workshop. Overall, 95 % of the participants were satisfied with the program content and leaders, and would recommend the program to friends and family. These results confirm the feasibility and acceptability of delivery of a high-fidelity, peer-led model for self-management support for cancer survivors. Expansion of the CTS represents a powerful tool toward improving health-related outcomes in this at-risk population.
KW - Cancer survivorship
KW - Chronic illness care
KW - Community-based intervention
KW - Long-term cancer survivors
KW - Self-management
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U2 - 10.1007/s13187-014-0652-8
DO - 10.1007/s13187-014-0652-8
M3 - Article
C2 - 24903138
AN - SCOPUS:84936098487
SN - 0885-8195
VL - 29
SP - 762
EP - 771
JO - Journal of Cancer Education
JF - Journal of Cancer Education
IS - 4
ER -